Well, here I am again. Blog, blog, blog, blog, blog!
What's new? Well, I am officially sick and tired of being sick and tired! The doctors say the tumor in my head is really not causing any serious set-backs....other than the head-aches. It seems the tumor (Pinky as I've named it) would cause more problems by being removed than it would to just leave it alone. It doesn't seem to be messing with my hormones as originally thought, so I guess it's "don't fix it if it aint broke"! I'll just have to live with the head-aches for now. They will want to monitor it a couple of times a year to make sure it doesn't get any worse. The bottom line is....I have a nasty case of Sarcoidosis, I take nasty drugs to make it better, and those two things just make me feel sick all the time....Live with it! OK I will! Now what? Don't know. If I can get back some energy, I should be able to do something as far as work goes, but I doubt if I can be a route salesman anymore. It's just to much physical labor for my body. I think I could do something more "white collar", but I don't have much experience in that line of work.
OK, what else? My wife and kids decided that I needed a dog to keep me company while I'm at home alone all day. So......I got a dog. She's an English Springer Spaniel. Two months old today. Her name is Grace. She is a bundle of energy, and seems to think that the world is her chew toy. She loves to be around people....to the point of driving us crazy at times. Like all babies it's eat, sleep, pee/poop, and play. She's fun! Charlotte and Alexa even like her....They aren't much of dog lovers.
Anyway, thats it for now.
Hasta Le Winabego (French for "leave the snails in the garden")
Tuesday, October 14, 2008
Sunday, September 21, 2008
More doctors...less fishing
Well, I haven't been fishing in about a month...that sucks! I have, however been to more doctors in that time than in the rest of my life combined!
The good news....The docs have possitivley diagnosed me with Sarciodosis (and auto-immune disease). That may not seem possitive, but at least we know part of the problem and can create a plan of attack for it.
....I don't have lymphoma!
The bad news.....I still have a tumor in my head that is in a very hard spot to operate on or bioptsy. The new theory is that it (the tumor) is screwing with my bodies abillity to control my hormones. Thus the fatigue, heart, blood pressure, pain (which is also from Sarcoid), dizziness, ect... It may also be contributing to the effects of the Sarcoid and my auto-immune problems(although they seem to be 2 seperate things).
Sssoooooo, off to a new doctor I go!!! Some long named specialist that deals with hormones in the brain. He'll see if he can determine the hormone levels and then try to control them whith animal/synthetic hormones. I may literally become as healthy as a horse! The neuro-surgeon/oncologist is going to take my case to a national board to discuss how to best get rid of "pinky" as I've taken to calling my tumor. They meet via conference call every 4-6 weeks. Hopefully that will produce a few ideas so I'm not on drugs/hormones the rest of my life.
OK...enough medical crap!
I'm going to look at a dog today. An English Springer Spaniel puppy. My wife (of all people) and Michelle decsided that since I'm home alone all day that I needed a dog. I'm still not convinced myself, but I do like dogs...I'm just not sure I'm up to the work, although I do have the time.
Our house is finally comming back together. We have carpet and vinyle in, and are starting the finish work. It looks really good! Charlotte has been working her butt off since I can't work for very long periods. I think the house will be better than it was before!
Bc, Lauren, and Caleb moved into the house next door. They are living communally with another couple and two other individuals...not sure I could live like that, but they seem to do fine with it. It definately saves money for everyone. They all seem to get along well, and are good neighbors. Plus its nice to have them all close by. Amanda's working and thinking about buying "All American". It's a kiosk in the mall in Albany. They serve Ice cream and specialty drinks. Whether she buys it or not, she'll learn something in the process of it all, I'm sure. Adam and Alexa are back in school. Adam is running cross country...I hope it motivates him to keep his grades up. I know he is enjoying the physical activity, and loves to be a part of a team. Alexa is a cheerleader, and seems to be enjoying it. She takes our razzing pretty well. We're not much of the "cheerleader" types around here.
Fishing and hunting seasons are just about here! Salmon season may be short since we can only catch 5 this year, although that would be great compared to last year! Hunting starts next month, and I have a doe tag this year, so should get something. There are a lot of good places close-by that I can road hunt so I don't have to walk. It kind'a sucks having to plan everything in my life around this crappy illness....GEEEZZZ!
Well, thats it for now.
SiaNara (thats Spanish for "please save me some goat-cheese")
The good news....The docs have possitivley diagnosed me with Sarciodosis (and auto-immune disease). That may not seem possitive, but at least we know part of the problem and can create a plan of attack for it.
....I don't have lymphoma!
The bad news.....I still have a tumor in my head that is in a very hard spot to operate on or bioptsy. The new theory is that it (the tumor) is screwing with my bodies abillity to control my hormones. Thus the fatigue, heart, blood pressure, pain (which is also from Sarcoid), dizziness, ect... It may also be contributing to the effects of the Sarcoid and my auto-immune problems(although they seem to be 2 seperate things).
Sssoooooo, off to a new doctor I go!!! Some long named specialist that deals with hormones in the brain. He'll see if he can determine the hormone levels and then try to control them whith animal/synthetic hormones. I may literally become as healthy as a horse! The neuro-surgeon/oncologist is going to take my case to a national board to discuss how to best get rid of "pinky" as I've taken to calling my tumor. They meet via conference call every 4-6 weeks. Hopefully that will produce a few ideas so I'm not on drugs/hormones the rest of my life.
OK...enough medical crap!
I'm going to look at a dog today. An English Springer Spaniel puppy. My wife (of all people) and Michelle decsided that since I'm home alone all day that I needed a dog. I'm still not convinced myself, but I do like dogs...I'm just not sure I'm up to the work, although I do have the time.
Our house is finally comming back together. We have carpet and vinyle in, and are starting the finish work. It looks really good! Charlotte has been working her butt off since I can't work for very long periods. I think the house will be better than it was before!
Bc, Lauren, and Caleb moved into the house next door. They are living communally with another couple and two other individuals...not sure I could live like that, but they seem to do fine with it. It definately saves money for everyone. They all seem to get along well, and are good neighbors. Plus its nice to have them all close by. Amanda's working and thinking about buying "All American". It's a kiosk in the mall in Albany. They serve Ice cream and specialty drinks. Whether she buys it or not, she'll learn something in the process of it all, I'm sure. Adam and Alexa are back in school. Adam is running cross country...I hope it motivates him to keep his grades up. I know he is enjoying the physical activity, and loves to be a part of a team. Alexa is a cheerleader, and seems to be enjoying it. She takes our razzing pretty well. We're not much of the "cheerleader" types around here.
Fishing and hunting seasons are just about here! Salmon season may be short since we can only catch 5 this year, although that would be great compared to last year! Hunting starts next month, and I have a doe tag this year, so should get something. There are a lot of good places close-by that I can road hunt so I don't have to walk. It kind'a sucks having to plan everything in my life around this crappy illness....GEEEZZZ!
Well, thats it for now.
SiaNara (thats Spanish for "please save me some goat-cheese")
Thursday, September 4, 2008
something to do
Everybody has a blog these days....I got the time....Why not? So, it seems I'm sick. The doctors don't know what I have. They think its an auto-immune disease called Sarcoidosis, but they're not sure. Why?....because not everything fits into their "one-size-fits-all" box. They think I have Sarcoidosis, but they can't tell me why the drugs I'm being given aren't working like they should. Seems my symptoms won't go away. Some have gotten better, but not gone. Oh, yeah, not only that, but I have symptoms that don't fit the Sarcoid-sized box. It seems I have a tumor in my head that doesn't look, act, or respond like a Sarcoid tumor. The neuro-surgeon at OHSU thinks it may be lymphoma....HHMMMMMM! Too bad it took a week for anybody to tell me! I'm getting a little pissy about the lack of a sense of urgency by the docs to do anything. They seem to want my illness to fall into one "box", and if it doesn't fall where they want it to, they just let the rest of the facts fall to the way-side. Seems like they don't want to be wrong....to the point of forcing me to be miserable untill I get mad at them and tell them to do their job...then they have the nerve to act offended!...Jeezzzz!!!!I'm sorry your a dumbass, doc, but I'm tired of feeling this way and want you to do your job, or send me to someone who will! Okay, enough bitching!
I got to go to the river (Siletz) and sit on a rock and fish! Best day in a long time! Wiped me out, but worth it! So many fish! must have seen 20-30 steelhead...easy. Water was very low (2.7ft) and warm, so didn't catch any...had a couple of bites. Went with BC....Thought he had one for sure...saw him bite and roll...BC set the hook, but missed! Crap! We really wanted to come home with a fish....Oh, well...next time. Saw a Chinook in the "Point". Seems early, but I can believe it. Had a great day listening to the river and breathing the air. Best medicine in the world! Had a great time with BC....great guy! Really proud of him!
Okay, thats it for now. My first blog. who, hoo! Seems anti-climatic....
I got to go to the river (Siletz) and sit on a rock and fish! Best day in a long time! Wiped me out, but worth it! So many fish! must have seen 20-30 steelhead...easy. Water was very low (2.7ft) and warm, so didn't catch any...had a couple of bites. Went with BC....Thought he had one for sure...saw him bite and roll...BC set the hook, but missed! Crap! We really wanted to come home with a fish....Oh, well...next time. Saw a Chinook in the "Point". Seems early, but I can believe it. Had a great day listening to the river and breathing the air. Best medicine in the world! Had a great time with BC....great guy! Really proud of him!
Okay, thats it for now. My first blog. who, hoo! Seems anti-climatic....
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